How will we use information about you?
Since we started our research, the General Data Protection Regulation (GDPR) has come into force. That is why we would like to share some updated information about your data with you. We have not changed the way we handle your data – we just need to give you additional information on what your choices are.
Your hospital will need to use information from you and from your medical records for this research project.
This information will include your NHS number, name and contact details. People will use this information to do the research or to check your records to make sure that the research is being done properly.
People who do not need to know who you are will not be able to see your name or contact details. Your data will have a code number instead.
We will keep all information about you safe and secure.
Once we have finished the study, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the study.
What are your choices about how your information is used?
You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we already have.
If you choose to stop taking part in the study, we would like to continue collecting information about your health from central NHS records, up to 1 year after your baby was born. If you do not want this to happen, tell us and we will stop.
We need to manage your records in specific ways for the research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.
Where can you find out more about how your information is used?
You can find out more about how we use your information:
by asking one of the research team
by ringing us on 020 7882 5636.